They-think-they-are-so-healthy1

This post is dedicated to Zoe Bartlett, who died on 21.7.2016 before she took her first breath. We will always love her. 

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In the beginning

For the majority of my life, the proverbial waters were still and calm.

In the endless spring of early adulthood, one inexplicably contrives to generate a thunderstorm capable of unsettling tranquil waters, but unless possessed of a unique brand of recklessness, attempts are usually futile.

Trying to create waves in the ‘ocean of life’ could be compared to a small child splashing in a paddling pool.

Getting splashed can very annoying, but in no way dangerous. And besides, as soon as the child’s arms tire out, the waters revert to an absolute tranquility.

Now, even if you are feeling particularly irked by the relentless delivery of hideously over chlorinated H2o into your nasal passage AND your mini tormentor happens to be possessed of subhuman stamina levels (quite feasible) it remains possible to exact a level of control over this distinct type of watery disruption.

A few carefully selected words to the child’s parents, suggesting little Johnny wrecking everybody’s fun in the pool MIGHT be more important than their oversized glass of chianti and Jackie Collins novel, usually does the trick.

So it shouldn’t come as a surprise that true turbulence is not so easy to generate from within and is not so simple to stop as a toddler who had too many refill trips to the coca cola tap at lunchtime.
When real storms arrive, full of blood and thunder, the waves they perpetuate are totally merciless, unquestionably frightening and intimidatingly unstoppable.

They are always unannounced.

In moments such as these one realizes that a rackety old rowing boat and a wooden paddle are not much use in the middle of the Atlantic.

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The Gods of Olympus

Two lovely sons, a wife I adore and a life committed to my passion, exercise. I was feeling blessed. Not that it had been entirely plain sailing.

I’d successfully navigated relentless self-doubt, innumerable bouts of soul searching and countless poorly chosen paths, but all in all, nothing your typical mid-thirties humanoid doesn’t experience.

It was all self-generated turbulence (see above) and I’d emerged largely unscathed.

Perhaps the gods decided they’d been smiling on me a little too brightly of late.

In my bleaker moments, I’ve imagined them conspiring together on Mount Olympus.

zeus

“That cocky so and so in West London needs a bloody good lesson in gratitude.”

Said Neptune, the God of Water, to Zeus, the God of all things.

“I’m not sure I like the way he’s galloping around all full of ‘happiness’. I liked him better when he was full of unwarranted melancholy.

Quite frankly, it’s really starting to P me off.”

“Me too.” Replied Zeus.

“Let the bugger have it. Make his waters as stormy as you like Neptune.”

And that, as they say, was that.

The first labor I faced was relatively small. In fact, it was tiny.
A teeny, tiny dark mole that would have gone unnoticed were it not for a lunch date with my father.

“I’d get that mole on your pin peg checked out Son.”

Suggested my Dad, in his inimitable London Brogue.

A quick mental thumb through the cockney rhyming slang (a cryptic language used by working class Londoners to confuse police in the early 20th century) dictionary precipitated a glance down at my leg.

“I will”.

I did. It was a Melanoma.

It was news to me that seemingly inconspicuous moles on your pin pegs (legs), or your chalk farms (arms), or even on your boat race (face), can kill you.

My melanoma was caught early...

...but multiple hospital scans, anxious waits for lymph node biopsies and late night ‘worst case scenario’ google searches, change a person.

Head on confrontation with ones own mortality flips a switch inside.

Anybody who has felt the heat radiating intensely from the ovens in the kitchen of uncertainty that is Cancer knows this to be true.

This switch brings with it vulnerability, caution and fear, and like the Wild West bandit who glances down to see the bullet intended for his heart, stopped in its tracks by a solid silver cigarette holder in his shirt pocket and converts to the priesthood overnight, the person you were is left behind forever.

cowboys
Perhaps it is because I was given the all clear and my diagnosis so favorable, (my experience may not be shared by those with less fortuitous prognosis) but as the fog that had so blurred my vision since diagnosis gradually dissipated, my eyes were introduced to a new clarity of vision and perspective.

In my case, I’m more than a little embarrassed that my newfound panorama was cheesier than a visit to a Dutch Edam factory. Cheerily consuming a triple cheese toasty whilst enjoying the company of a family of cheese loving, talking mice discussing the contrasting benefits of Roquefort and Stilton. (Roquefort, creamy and robust, Stilton, crumbly and sharp).

So overall, you’d have to say it was fairly cheesy.

Yes. A new perspective on love...

WAIT...wait, don’t leave, before you get back to the procrastinators hobby of mindlessly scrolling your Facebook feed, or worse, get on with something infinitely less important, like work, hear me out.

I speak not of the ‘Hearts and roses and splitting your Wrigley’s gum stick in half and sharing it with the inexplicably semi-naked woman sat next to you on the bus’ love.

The last thing on your mind when you’re having a profound moment such as this is ‘romantic’ love.

Nor am I referring to a ‘feeling’ of love. Emotions are only useful to those who experience them.

Pre-diagnosis, whilst scoring consistently highly in the ‘feeling’ love category, (giving me the undeserved satisfaction of thinking I was a loving person), I was consistently notching up ‘nil-pwa’ in the ‘Doing’ love discipline.

Rendering it pretty much worthless.

‘Doing’ love can be tangibly defined through sharing what you know selflessly, DOING what you can willingly and offering genuine kindness, time and understanding to other people.

In my experience, this is about the only thing that holds up against the brevity of ones own existence.

Somebody probably needs to tell those that work in the financial services industry, but it is impossible to ‘do’ love with an inanimate object. (Yes, I know there are many, MANY jokes that I could neatly insert here but this blog is certified PG.)

We spend so much of our lives in the pursuit of things we hope will make us happier, but ultimately, investment in people offers a much higher ‘happiness dividend’ than an impressive fiscal bottom line ever could.

Ever since the diagnosis, the only investments I make are in people. This change has been the greatest blessing of my life.

However, in the wake of such a dramatic paradigm shift, my readiness to remain aboard my shiny new “Love boat” was about to be tested.

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Pride and privilege

We are a largely privileged bunch in the 21st century Western world and I’m deeply cautious that the thunderstorms in our lives are relative.

Some may consider an early stage cancer diagnosis to be relatively mild turbulence, some a hurricane of unimaginable magnitude.

For me, it was profound in terms of shifting perspective, but not nearly as emotionally challenging as the next trial the gods had in store.

As I write these words, the story takes us into ‘real time’ and the looming clouds that cast shadows over the people I love most hover ominously in the sky above.

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Two of a kind

When we found out we were having twins we fell off our chairs.

When we found out they were girls we cried. I had been secretly hoping for them to be so.

When we discovered one of our daughters had downs syndrome, the doctor waited in vein for another reaction.

All he got was a smile. For us, nothing had changed.

Actually, that’s a bit of a lie, her position as underdog actually made me love her more.

I’ve always had a soft spot for people who don’t fit the mold. I gravitate towards those that bring a variety of flavors and spices to the party, the people that standout from the crowd, the brave few that fly in the face of convention. Whilst I would seldom speak for Alex in my blog or anywhere else, I will say she shares this particular view.

She truly was OUR daughter.

Perhaps it’s because I myself have always been the square peg that could never find a hole to fit in*.

(*For those who can relate, this type of personality can make childhood particularly difficult to navigate but adulthood smugly pleasing. If any young people reading share this disposition. Don’t change. Ever.)

If old Zeus and Neptune felt that a child with Down’s syndrome was any type of a problem to us they were well wide of the mark, she was a blessing in every way.

I like to think they aren’t cruel enough to consider this a green light for what was to come, but lets face it, they’ve got previous.

First came the detection of a heart condition.

“We can fix it”.

The doctors said.

“Ok. That’s good then.”

I said.
After that, a rare stomach complication was uncovered.

“The complexity is increasing but we think can still fix it.”

They said.

“OK. That’s good then.”

I said.

Complications kept arising, the storm kept brewing, but our family continued to march bravely on.

At 32 weeks gestation, we updated our friends with a celebratory message. We had passed a milestone the medical profession had thought we wouldn’t reach.

Recklessly in hindsight, we could only see a positive outcome.

Our two little girls would both be with us soon...
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Stick or twist

Blackjack is a card game between a player and dealer. The game is to beat the dealer in one of the following ways:

  • Get 21 points on the first two cards
  • Reach a final score higher than the dealer without exceeding 21; or
  • Let the dealer draw additional cards until his or her hand exceeds 21.

After every card is laid down the dealer will ask you whether you wish to ‘stick or twist’.

If you have 13, the decision is easy. You twist as 13 is rarely a winning hand.

If you have, say 20, it is easy to choose stick. The dealer is unlikely to beat 20 and there is only one card in the pack that could help you. Twisting would probably bust.

The hardest decisions in blackjack are 16 and 17. One decision is not clearly better than the other.

You may stick and find the dealer hits 18, or you may twist, hit a 10 and bust.

2097
When the doctor told us that our little girl was struggling in the womb we asked what that meant.

“There has been a significant change in blood flow to the organs. Under normal circumstances we would get them both out immediately...”

These weren’t normal circumstances. She continued.

“...but if we take her out now the risks are very large.”

‘Risk’ is doctor speak for your daughter may die. We both knew that.

“OK. So what are we going to do?”
I asked.
The doctor carefully placed the next card on the table.
“There is no right answer...we can offer our opinion, but the complexities are too many to understand which route is better at this stage.

You and your wife will have to decide.”

If we were playing blackjack we’d just hit a 16.
Stick or twist.

There is no way of preparing yourself for a decision like this.

The feeling of holding your daughters life in your hands whilst simultaneously feeling almost entirely helpless is not an enviable one.

Alex instinct told her proceeding with the pregnancy was the right thing to do.

Intuition has more wisdom than logic in such moments.

This WAS the right decision, regardless of the outcome.

We both believe that.

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A bridge over troubled water

Life usually imitates art so when Simon and Garfunkel sang about the “Bridge over troubled water” being a person. I assumed it was true.

My experience has been markedly different.

When faced with the toughest moments in life you desperately search for the people you love most to be your bridge.

They can’t be.

For the people who care the most have jumped headfirst into the troubled waters with you, absent of fear and without hesitation. It is, of course, impossible to be submerged in water and a bridge at the same time.

When a brutal wave hits and you are struggling for breath, consumed by the relentless crashing of angered, salty water, the greatest comfort one can have is reaching out, and finding a warm hand to hold.

bridge

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Four phases

They say we experience four stages of life before the process of winding down commences.

The Birth. We start.

The Growth. We Learn. We improve. We grow.

The Discovery. Growth gives way to discovery. Playing with our talents and our abilities. Discovering what is possible and what is not.

The Realization. With a greater comprehension of what we can do, we put it to use.

I’ve worked in exercise for twenty years, but I only ‘realized’ what exercise is for in the last few months. The ‘journey of exercise’ echoes the ‘journey of life’ in such harmony that it seems almost poetic.

The Birth: You find exercise.
The Growth: You train for vanity, to lose weight, to be leaner, to be faster, to be stronger.

The Discovery: Exercise stops being about results but rather about how can it make you feel and what you can achieve in life with it as a bedfellow.

You exercise because you want to, because without it life is that much poorer.

I thought this was the realization phase. I thought that exercising for pleasure and for progress with life in general was the pinnacle of the journey.

I was wrong.

The Realization: In the toughest moments, when there have been no answers. Exercise has been my bridge over increasingly troubled water.

The proverbial bricks I’ve spent a lifetime laying and the bricks that continue to be laid every day, provided a sure footing, albeit temporarily, on which to take respite from the brutal waves of the ocean.

Without exercise, I fear I may have sunk.

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The Moral of the story

Our situation has not been particularly remarkable, and struggles are every bit as relative as luxury.
Above all, we feel fortunate, positive and happy. Sympathy is not within our agenda. We are remarkably blessed in our lives, regardless of what the future may hold.

Many people will suffer greater difficulties than we ever will, and we may have many more challenging decisions and trials around the corner and up the road.

The great equalizer is the realization that mind, body and spirit are intrinsically linked.

When the mind and the spirit are stretched to the limit, a healthy body can become the bridge that provides a sure footing, the shelter from the storm and the boat that offers rescue.

I find little to no irony in recalling that in order to build a strong body, only mind and spirit could carry me through when the physical body was flailing.

So. The takeaway is simple.

The Ford dealer suggests driving a Mustang for speed and comfort on journeys.

The dairy farmer recommends drinking milk for healthy gums and bones.

The shepherd exhorts the benefits of wearing wool to stay warm this winter.
And the exercise coach recommends exercise for everything else. (Sorry Mastercard.)

Look after your body. Don’t worry if you aren’t already doing it. Start today. The payback is immediate.

And one day it will look after you.

P.S Her name is Zoe, which means 'life' in Greek.

Much love to everybody who supports us with kind messages, thoughts and prayers. x

45 Comments
  1. Bron 2 years ago

    Daniel, i just read your latest blog and am so grateful for your beautiful words . We need more people like you in this world that can remain positive and wise and strong in the midst of the storms that life throws at us.
    My 18 year old son was diagnosed with stage 4 melanoma last year and i went downhill very quickly in my health when we found out, and i could not be a support to him when he needed me most.
    Thankfully, surgery ( 81 stitches on his face ) has removed it but we have this constant fear that another one will appear somewhere else on his young body.
    To read your story has been amazing and i feel your outlook on life will carry you through whatever comes next.
    Too many of us focus on the sorrows and not the blessings.
    Best wishes to you and Alex and your precious daughters .

    • Author
      Daniel Bartlett 2 years ago

      Dear Bron,

      All of our positive thoughts are you and with your son. So young to be faced with such a difficult situation. I am sure he understands that you were in the waters with him, making it difficult to be the bridge. Both bravery and support have many, many forms of expression.
      Fear is a dangerous animal that is hard not to feed. If your son wants to talk a ‘youngish’ bloke (he wont think i’m young, but tell him i’m not 40 yet) who has shared his experience, albeit with a lesser stage, then I would love to do so.

      Thanks you so much for your positive words.

      Daniel

  2. Lisa McQueen 2 years ago

    Daniel, WOW!!! What a message.It touched my heart. It also reminded me how blessed I am to have talked to you just that one time then Daniel. Everything happens for a reason and as you know I’ve been through a lot but I choose to keep on and I’m not going to quit. It’s so easy to get caught up in one’s own issues and things that are going on in your life. But sometimes when you look across the way there someone going through just as much or twice as much and you would never know it. This life that we live is so precious and we have to make the very best of it. We are going to be faced with so many bumps in the road obstacles if you want to call it that and just challenging moments. When faced with these moments we have to decide what we’re going to do because that will determine the rest of our days. I know it’s not always going to be easy like I said before but your attitude and your outlook and the way that you and Alex face things head-on and together is awesome. It’s a reminder to everyone that you just can’t quit, you can’t give up you can’t roll up in a ball and wish things away. You get up every day you do the best that you can you make the best decision that you can and you work together and you get through it somehow. Daniel I have so much respect for you. And my heart really does go out to you being a mom and having my own kids. Thank you for the many lessons that you have taught me. And the many more that I’m sure that I will learn. You are a fighter and a trooper with a good heart and a true spirit. And a dear kind man that took the time to share complete strangers. I so appreciate that.

    • Gail 2 years ago

      I have read every word and have a huge amount of respect for you both. I am sorry to hear your news but I feel sorry for anyone going through worrying times ( I know you don’t want pity) . I will be thinking of you all in the coming weeks x

    • Author
      Daniel Bartlett 2 years ago

      Thank you Lisa, our wonderful Friend in Brooklyn, New York.

  3. Streetie 2 years ago

    Ohhh… I have no words, so am sending you, Alex and your boys big hugs, love and positive thoughts from the other side of the world, here in Australia. Thank you for your courage in sharing with us all.

    • Author
      Daniel Bartlett 2 years ago

      Thank you for your kind words and hug.

  4. Rickismom 2 years ago

    Excellent blog and agree heartily with your conclusion.
    In addition , best of “luck” with your contubued pregnancy and the health of your daughters. I know how hard the uncertaincies are but I know that you both have the strength to get through this.

    • Author
      Daniel Bartlett 2 years ago

      Thank you.

  5. Yajaira Christian 2 years ago

    Hello Daniel and Alex!!

    I’m so grateful to be part of this community.. Your words of wisdom have always make me think about my life and personal situations.. I’m astonished by your positive way to see everything! I like to come here to this blog to read, I always find peace and answers. Thank you for everything!!!! I’m praying for you family!! ❤️

    • Author
      Daniel Bartlett 2 years ago

      Thanks so much Yajaira.

  6. Nicole Viscio 2 years ago

    You truly inspire me to always have confidence and keep faith! I love the outlook you and Alex have. I wish you both luck and happiness always!

    • Author
      Daniel Bartlett 2 years ago

      🙂

  7. Marinela 2 years ago

    I’m pretty sure that you already know this but it’s always nice to hear it out (or in this case read it out ): it’s not our problems that define us but the way we react to them. Neptune and Zeus have lots of waves in store for us all, but that is not what matters, what matters is that we surf our way out and by doing that becoming a better version of us. I know that both you and Alex have it in you to overcome whatever the Gods may throw your way. You both have my respect and my admiration for being such a beautiful people inside out. I’m sending you all my good thoughts and prayers always! P.S. Big waves can get scary but they give you the surfing experience of a lifetime!!!

    • Author
      Daniel Bartlett 2 years ago

      🙂

  8. Allyson Carter 2 years ago

    Zoe! Life! How beautiful and a wonderful confession! Alex, Daniel you guys are truly amazing!

    • Author
      Daniel Bartlett 2 years ago

      🙂

  9. M Cumings 2 years ago

    I came over here to tell you how thoroughly I enjoyed Ultimate Tabata this morning on my first try and read this. Your family and precious Zoe particularly are in my prayers today. I’m asking God for mercy, grace, and peace as you face decisions and the ever difficult waiting.

    • Libby 2 years ago

      Ditto, I will pray for you, my daughter’s name is Zoe for the reason it means life. When I was pregnant we had a time when we were worried about her and this name is a declaration. Regardless of your faith, God has a plan for all of your lives. For me it is clear in the life of Jesus, I am not preaching but just reminder for you that He has big shoulders to cry on and a good set of ears to hear all your worries and ultimately He is a very present help in a time of trouble. Take care of yourselves and thanks for your real post.

    • Author
      Daniel Bartlett 2 years ago

      🙂

  10. Sonja 2 years ago

    Hallo Daniel&Alex! I just read your blog I’m so tushed with your outlook on live I wished there where more people like you and Alex the world would be a better place ! Thank you for letting us in and share those with us I have so much respect for both of you and I no you two will be strong for anything! I wish your families all my love ❤️

    • Author
      Daniel Bartlett 2 years ago

      🙂

  11. Phyllis Cooper 2 years ago

    Daniel, Such eloquent, thought-provoking words from a person I have never met but feel such a strong connection to, both you and Alex. My heart goes out to you both as a parent of a grown daughter who was diagnosed with MS two years ago. To see our children face illness at any age can be devastating and heart-wrenching for a parent (I raised my daughter alone). But it’s one of those curveballs that life throws at you, and I’m envious of the strength you and Alex have shown. You truly inspire me to be that bridge over troubled water for my own child rather than dwelling on the unfairness of it all. We are all better off for having you come into our lives. Thank you for sharing your personal journey with us.

    • Author
      Daniel Bartlett 2 years ago

      Thank you for your words Phyllis. I am humbled to have had a positive impact, no matter how small, in the challenging journey you take with your daughter. All our best wishes and positive thoughts with your family. Daniel

  12. Val 2 years ago

    Having worked out with you and Alex and your team so many times, we feel like we know you all, so reading your blog has really touched my heart. We’ve also been through the cancer diagnosis, surgery, recovery and remission so know the flood of emotions that go along with it. Only good, caring, loving thoughts are sent your way for you and your family!

    • Author
      Daniel Bartlett 2 years ago

      Nothing pleases me more than the seeing the word remission after the word cancer. Thank you so much for your kind words and thoughts Val.

  13. Elisa Blue 2 years ago

    Thank you Daniel for your beautiful words. You and Alexandria are such an inspiration. I work with special needs kids, I like to call them special skills warriors. I know that all children are special, but our special skills warriors bring love, light, and learning in a much different way. Much love to your whole family as you continue on this journey of new discovery. You are all loved and appreciated. Be well and I look forward to hearing more on your adventures.

  14. Keira Polywka 2 years ago

    So beautifully written, Daniel, and such a privilege to have been allowed access into some of your most tender and turbulent moments. I hope Zeus and his gang can give it a rest for you now. I think if their intention was to make you stop and smell the roses, it probably worked! You and Alex are strong, exceptional people and can get through this most difficult of times. Please remain positive. As you know, humor and lightness go a long way to making a tough situation seem not quite so bad… Thank you for writing this blog. I’m sure it was therapeutic for you, but please know how inspirational it is to those of us who follow you. (Now, strangely, I think I feel an urge to go and press play on one of your workouts!)

    • Author
      Daniel Bartlett 2 years ago

      Always looking to inspire a workout 🙂

  15. Tricia 2 years ago

    Daniel and Alex and family,
    Such a moving story that could overwhelm many, but your attitude is simply wonderful, and both humbling and inspiring. I really wish you continued strength in the coming weeks and beyond and that medical science can overcome the challenges your little girl may face! If the girls have even an ounce of your strength Zoe and her sister will come through this! Wishing you all the best!

    • Author
      Daniel Bartlett 2 years ago

      🙂

  16. Mark Laing 2 years ago

    Thanks again Daniel for inspiring me and so many people with not only your workouts but your words. I’m 41 with 2 young kids of 5 and 2. Before they came along I was fairly fit, that quickly disappeared for what I thought was time reasons – you have shown me that is no excuse. I want to be the best I can be for my kids and you are helping me get there. I just wanted to say thanks and to say my thoughts are with you and your family over the next few weeks.

    • Author
      Daniel Bartlett 2 years ago

      Thank you Mark.

  17. Ronald Pusateri 2 years ago

    Dear Daniel and Alex, When I first read your Blog I had to walk away from the computer and digest what I had just read. I reach out to you both with sincere thoughts of comfort and support. Working out with you via videos I see strength and determination that will challenge both Neptune and Zeus.
    Stay Strong, Ron

    • Author
      Daniel Bartlett 2 years ago

      Thank you for your thoughts and words Ron.

  18. Maxine 2 years ago

    Dear Daniel,
    What a beautiful blog about your road well travelled and the lessons learned along the way. At the heart of it shines your and Alex’s love for Zoe and whatever happens, she will know that love, that has no boundaries and never ends. There are no “right platitudes” to say to you both about what happens next. Know that we are supporting your from afar, sending you our love from afar and holding you in prayer. Please give my love also to Alex xx

    • Author
      Daniel Bartlett 2 years ago

      Thank you so much Maxine.

  19. Danny 2 years ago

    Dear Daniel and Alex and your lovingly family, I was so moved while reading by your kind and courageous spirit. Best wishes to your family. May the troubled water be a pleasant stream. Life is too short for anyone. Your story showed that fear should not be an option in such difficult moment of making a decision. Thank you for sharing this. Wish you and family all the best!

  20. Clare 2 years ago

    I stumbled across you and Alex 7 months ago on you tube while looking for some inspiration to work out at home. I have little time with two young children and a husband that works shifts to venture to the gym.
    You have both been an inspiration in so many ways. Reading your blog has taken my breath away with no workout in sight! I am a strong believer that our paths are set out for us and we are dealt things that we are able to cope with and embrace, making the impossible possible.
    Best wishes to you, Alex and your beautiful daughters. Xx

  21. Elle Kendrick 2 years ago

    Dear Daniel & Alex,
    Thank you for sharing your personal journey on here. I am not very good with words but sometimes words aren’t needed. I just wanted to send you a big hug .

  22. Sonja 1 year ago

    I am so very sorry for your loss, Daniel and Alex!
    I am 6 months pregnant right now and working out daily with your low impact work outs on youtube. Today I wanted to sign in in order to find some more suitable workouts and found your story.
    I lost my fourth child last year in March. I was in week 33. She was a girl with down syndrome and a heart failure.
    Life goes on and the sun will shine again. And our children will never be forgotten.
    Lots of love and strength from Germany,
    Sonja

  23. Ruthann 1 year ago

    You two are inspiring. You have an amazing outlook on life and I hope that every human follows your lead. Thank you for everything from the workouts to the blog you make my life better!

  24. Sherry Chaffin 9 months ago

    Daniel, Alex, and children… just came across this beautifully written piece of your heart, Daniel, and I am blown away. Just when I think I can’t possibly admire you and Alex more than I already do, you find a way to make me admire you just a bit more. Thank you for sharing Zoe’s story, and for the wonderful reminder to all of us about the truly important things in life. What a lucky girl she was to have parents like the two of you. Much gratitude and love to your family.

  25. Ashley Rodriguez 3 months ago

    Daniel your words are inspiring I know I’m late with writing because I just joined the team but as I read this blog I couldn’t help but feel the power of it as my son has hydrocephalus it’s when water is on the brain so to read your word has givin my hope that I can too progress with my son in this long journey that we face thank you

  26. Chantal Bastien 2 months ago

    Such beautiful words of love, resilience, patience and positivity …. which get us through what life brings to us. Beautiful text …

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